The purpose of support groups is to provide information to help patients with movement disorders and their caregivers.
Parkinson's disease is a degenerative neurological illness that impairs mobility. The common symptoms include tremors, slowed movement, stiffness, and balance problems. The severity and symptoms of disease differ from one individual to the next, but it is lifelong. Consequently, it may take some time for patients to adjust after receiving a diagnosis.
A support group is such a service that may be highly beneficial for patients suffering from tremors. In reality, support groups for persons with Parkinson's disease, and their family members and carers, can be helpful. There is a difference in every support group, so you might want to check out a few to find one that suits you the most.
Online support groups are also available; you may find comfort in seeing other individuals in similar situations in reality. Aside from that, you could discover that organizations that focus on certain topics or people in specific phases of life are the greatest fit for your requirements.
Parkinson's disease support group aims to help you discover the support you need to continue enjoying your life, and every support group has distinctive features.
Support Group Discussion
The focus is to discuss different aspects of Parkinson’s disease, such as diagnosis, improving quality of life, and to learn for caregivers. They also include:
- Current issues and challenges to tremor or Parkinson’s patients
- Movement issues
- Stress management
- Living daily life with symptoms of Parkinson’s disease such as balance issues and tremors
- Side effects of medicines
- Discussion with family members about disease progression
- Ways to deal with grief and depression
The following are some of the popular tremor support groups.
CT Essential Tremor Support Group
Under the assistance of the International Essential Tremor Foundation, a state-wide Connecticut essential tremor support group was formed (IETF). The support group provides a secure, informal environment for people who have been affected themselves by tremors. Individuals will not be questioned if their hands shake because they are cold or frightened during our sessions. Instead, members may receive support and cooperation, discuss coping strategies and keep up with the newest research and treatment choices.
The Brain Charity
Anyone with a neurological illness, like Parkinson's disease, and their family, friends, and carers, may get emotional support, practical assistance, and social activities from the Brain Charity.
Counseling, welfare benefits guidance, adult learning programs, confidence building courses, support groups for various ailments, job help, caregivers awareness, a legal service, and supported volunteering opportunities are just some of the brain charity services throughout the Merseyside and also provides a national information and guidance service including a public library and a national helpline.
International essential tremor foundation
Essential tremor (ET) is a neurological disease that produces a repetitive trembling of the hands when carrying out work like writing, eating, dressing, drinking, or while keeping a posture like maintaining the arms extended in front of the body. Different body parts like the head, legs, trunk and even the voice of a person can all be affected by the tremor.
National Tremor Foundation
The National Tremor Foundation (NTF) is a non-profit organization dedicated to providing assistance, support, and guidance to anybody suffering from tremors, regardless of age. The foundation is a non-profit organization committed to helping persons with tremors. It aim is to conduct research, give guidance, support, and information.
References
- https://www.healthline.com/health/parkinsons-disease/parkinsons-support-group
- https://www.dartmouth-hitchcock.org/parkinsons-movement-disorders/support-groups
- https://tremorsupportct.org/about-our-group-3/
- https://tremor.org.uk/about-us
- https://essentialtremor.org/what-we-do/et-awareness/
- https://www.thebraincharity.org.uk/about/about-us